Milo Gray Lawson, 7 years old
At age 13 months, Milo was diagnosed with Infantile Spasms, a rare form of epilepsy and a very difficult syndrome to treat. This chaotic brain wave activity contributes to developmental delays and children with infantile spasms represent one of the greatest challenges in pediatric neurology.
After 15 weeks on a daily steroid injection, EEGs, MRIs, countless appointments and tests, Milo’s seizures became manageable. But during this time period, Milo stopped progressing and even regressed in his overall cognitive and communication skills. For the past three years, Milo has received daily speech and occupational therapy visits and is enrolled in a special developmental preschool. He communicates with sign language and also has about 25 words he uses consistently. Milo was recently diagnosed on the Autism spectrum.
Seattle Children’s is a part of Milo’s weekly routine and in turn everyone at Children’s became familiar with this sweet, tow-headed, enthusiastic and social little boy!
Milo loves playing and listening to music, having dance parties with his older brother Sam, and watching his favorite movie, Finding Nemo.
Not only has Milo affected our lives, but those who come into contact with him are drawn into his orbit as if he is a bright, shining sun.
Seattle University's Dance Marathon has the special privilege of working with Miracle Kids from Seattle Children's Hospital, who have benefited from the Uncompensated Care Fund that our philanthropy supports. Our Miracle Kids and their families attend SUDM events throughout the year, including The Dance Marathon.